MARYLAND HEIGHTS, Mo. — Nothing lifts your spirits, quite like lifting someone else's. That's what they do every day at MDA Camp. "It's somewhere where you're not defined by your disease," said ...
Please provide your email address to receive an email when new articles are posted on . The FDA has approved an abbreviated new drug application for a generic version ...
More than two years after the Government committed to adding SMA to newborn testing, families are still waiting ...
LONG ISLAND (WABC) -- On Monday there are growing calls for leniency as many say the Department of Government Efficiency is going too far. Doctors and researchers say the trimming is about much more ...
Gene therapies have extended survival in muscular dystrophy, requiring improved care transitions from pediatric to adult systems. Current systems lack adequate staffing, specialists, and communication ...
Researchers evaluated oxygen saturation and arterial CO2 variables to screen for sleep disordered breathing in children with SMA type 1-3. Of the measures evaluated, only an oxygen desaturation index ...
LOUISVILLE, Ky. (WDRB) — The Louisville Fire Department is raising money for kids living with muscular dystrophy. The annual "Fill the Boot" campaign was started more than 70 years ago through a ...
• The "Fill the Boot" fundraiser ran from 3-6 p.m. and supports research, cures and local families affected by muscular dystrophy • Donations can still be made online through a QR code and dedicated ...
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